Polio Place

A service of Post-Polio Health International

Living With Polio

Millions of individuals who had polio are living in all areas of the world. Survivors range in age from a few months to nonagenarians (in their nineties). Aftereffects vary greatly depending on the number and location of the nerve cells destroyed by the poliovirus. The challenge or ease of living with polio varies for each survivor, depending on the availability of medical care and rehabilitation opportunities, and their family and social support.

Advice, hints, explanations, etc., are categorized by topic and are searchable. The source of the material is identified.

Reminder: PHI’s post-polio.org and IVUN’s ventusers.org or ventnews.org features numerous articles to assist in living with polio.

Constipation in Polio Survivors

From my standpoint as a specialist in Physical Medicine and Rehabilitation, the connection between constipation and post-polio syndrome is academic. i.e., it is an interesting discussion and may be important, but I am not sure it changes treatment. William M. DeMayo, MD

Here are some practical thoughts.

I would address the issue the same as a partial neurogenic bowel, i.e., in a stepwise fashion. It's hard to give a cookbook one size fits all answer, but some points would include the following:

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Health Professionals say: PPS-G14, Sequelae of Polio B91

In 2016, Post-Polio Health International (PHI) surveyed health professionals with experience in post-polio patient care. A PowerPoint of some of the data can be viewed at Survey of Health Professionals with Experience in Post-Polio Patient Care. Post-Polio Health, Volume 33, Number 3, (August, 2017) will feature an article about the results, too.

One thought not discussed in either of the above is related to definition and ICD-10 codes. The survey asked health professionals the following.

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Ten Axioms for Living With Polio

Joyce Ann Tepley, LMSW/ACP, LCP

1. Approach one's life from the inside out.

2. Anything one does physically comes from an idea first.

3. Work with intention rather than will power.

4. Attitude is more iimportant than activity.

5. An attitude is an idea blended with emotion. It is the most powerful energy in the world.

6. One can profit from a negative attitude just as from a positive attitude. It does not matter as long as one has an attitude of learning.

7. Living is a process, not a goal.

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Viviendo con dolor

Viviendo con dolor
Penney Cowan, Fundadora y Directora General de la Asociación Americana de Dolor Crónico.

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How I Learned to Stop Worrying and Love Technology

Daniel J. Wilson, PhD, Muhlenberg College, Allentown, Pennsylvania

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