Polio Place

A service of Post-Polio Health International

communication

Finding Good Information Online

 LEADERSHIP
Nancy Baldwin Carter, Omaha, Nebraska

QUESTION: “How do we help our members find good online information and use this in communicating with those in the medical community and others?”

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Losing members?

 LEADERSHIP
Nancy Baldwin Carter, Omaha, Nebraska

QUESTION: “Our group is down to about half a dozen members who rotate meeting at each other’s homes for lunch once a month. I’ve heard of other groups that are losing members as well. What can we do to keep our post-polio data bases from eroding to the point where we lose all contacts and are then unable to help anyone?”

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What is expected of a group leader?

LEADERSHIP  
Nancy Baldwin Carter, Omaha, Nebraska

QUESTION: “There is some question about what all is expected and not expected of the leaders of our group. We have a couple of new members who have come in and seem to think that we don't ask for or take suggestions from anyone and that we are a three run group which we are not. We ask for help but none is really offered and I have tried as well as the two others to get people to be more forthcoming.”

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Losing Speech

“Promoting Positive Solutions,” Post-Polio Health, Volume 29, Number 2, Spring 2013

Question: I am a 62-year-old happily married mother of two. I have a history of bulbar polio and have started speech therapy for new swallowing difficulties and problems with vocal endurance. Thus far, I have been able to adjust to every change brought on by post-polio syndrome, but this new change is really hard for me.

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Partner Abuse, Part 2

"Promoting Positive Solutions," From Post-Polio Health (Volume 30, Number 4, pages 8, 9, 10). Part 2.

Dr. Machell addresses female to male and same sex partner abuse: Intimate partner violence (IPV) isn’t just about male perpetrators and female victims. Men can be abused by a female partner. And in same-sex relationships men are abused by men and women are abused by women.

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More Worry as I Age

From the series, Polio Survivors Ask, by Nancy Baldwin Carter, B.A, M.Ed.Psych, from Omaha, Nebraska, is a polio survivor, a writer, and is founder and former director of Nebraska Polio Survivors Association.

Q: The older I get, the older my friends and families are, and it seems that they have one illness after another. Then there are the kids and grandkids, all with their hectic lives. I worry about them; I worry about the state of the world; I worry about the cost of things; I worry about my money lasting.

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Support Group Dysfunction

From the series, Polio Survivors Ask, by Nancy Baldwin Carter, B.A, M.Ed.Psych, from Omaha, Nebraska, is a polio survivor, a writer, and is founder and former director of Nebraska Polio Survivors Association.

Q: I am 58 years old and I attended a support group meeting recently. I will never go back.

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Communicating with Grown Children

From the series, Polio Survivors Ask, by Nancy Baldwin Carter, B.A, M.Ed.Psych, from Omaha, Nebraska, is a polio survivor, a writer, and is founder and former director of Nebraska Polio Survivors Association.

Q: As I get older and accumulate more secondary conditions, it is more difficult for me to get around. Do you have any suggestions as to how to communicate my knowledge about my post-polio health to my grown children when they really don’t want to “hear it”?

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Friends

RECONNECTING AFTER 55+ YEARS!   

Beverly Schmittgen, EdD

“Joyce Tepley, Joyce, Tepley,” I kept repeating to myself. I KNOW her!

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