Polio Place

A service of Post-Polio Health International

Living With Polio

Millions of individuals who had polio are living in all areas of the world. Survivors range in age from a few months to nonagenarians (in their nineties). Aftereffects vary greatly depending on the number and location of the nerve cells destroyed by the poliovirus. The challenge or ease of living with polio varies for each survivor, depending on the availability of medical care and rehabilitation opportunities, and their family and social support.

Advice, hints, explanations, etc., are categorized by topic and are searchable. The source of the material is identified.

Reminder: PHI’s post-polio.org and IVUN’s ventusers.org or ventnews.org features numerous articles to assist in living with polio.

Newsletter content

LEADERSHIP
Nancy Baldwin Carter, Omaha, Nebraska

QUESTION: “We have published a support group newsletter for more than ten years and feel it is time to re-evaluate its content. What should go into a good polio newsletter?”

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Working with physicians in our area

∞ LEADERSHIP
Nancy Baldwin Carter, Omaha, Nebraska

QUESTION: “My physician seems to have little knowledge of potential polio problems. Should I be worried? What are my options?”

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Losing our rights?

∞ LEADERSHIP
Nancy Baldwin Carter, Omaha, Nebraska

QUESTION: “Members in our group have been commenting on certain changes that affect our lives in many ways. Seems as if various government agencies aren't as willing to help as before, for instance, and sometimes we're left with a financial burden we can't handle. Are we in danger of losing some of the rights so many of us fought for?”

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Finding Good Information Online

 LEADERSHIP
Nancy Baldwin Carter, Omaha, Nebraska

QUESTION: “How do we help our members find good online information and use this in communicating with those in the medical community and others?”

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Losing members?

 LEADERSHIP
Nancy Baldwin Carter, Omaha, Nebraska

QUESTION: “Our group is down to about half a dozen members who rotate meeting at each other’s homes for lunch once a month. I’ve heard of other groups that are losing members as well. What can we do to keep our post-polio data bases from eroding to the point where we lose all contacts and are then unable to help anyone?”

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