Polio Place

A service of Post-Polio Health International

Living With Polio

Millions of individuals who had polio are living in all areas of the world. Survivors range in age from a few months to nonagenarians (in their nineties). Aftereffects vary greatly depending on the number and location of the nerve cells destroyed by the poliovirus. The challenge or ease of living with polio varies for each survivor, depending on the availability of medical care and rehabilitation opportunities, and their family and social support.

Advice, hints, explanations, etc., are categorized by topic and are searchable. The source of the material is identified.

Reminder: PHI’s post-polio.org and IVUN’s ventusers.org or ventnews.org features numerous articles to assist in living with polio.

Finding Good Information Online

 LEADERSHIP
Nancy Baldwin Carter, Omaha, Nebraska

QUESTION: “How do we help our members find good online information and use this in communicating with those in the medical community and others?”

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Losing members?

 LEADERSHIP
Nancy Baldwin Carter, Omaha, Nebraska

QUESTION: “Our group is down to about half a dozen members who rotate meeting at each other’s homes for lunch once a month. I’ve heard of other groups that are losing members as well. What can we do to keep our post-polio data bases from eroding to the point where we lose all contacts and are then unable to help anyone?”

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What is expected of a group leader?

LEADERSHIP  
Nancy Baldwin Carter, Omaha, Nebraska

QUESTION: “There is some question about what all is expected and not expected of the leaders of our group. We have a couple of new members who have come in and seem to think that we don't ask for or take suggestions from anyone and that we are a three run group which we are not. We ask for help but none is really offered and I have tried as well as the two others to get people to be more forthcoming.”

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Techniques to Help Us Make Changes

Mavis Matheson, MD, Regina, Saskatchewan, Canada

In 1995, I wrote an article called Changing Your Life By Conserving Energy. In it, I listed three techniques from an article by Sybil Kohl. Her techniques have helped me to make healthy choices and prevent further pain and weakness. Kohl [1] suggests three techniques that we could use to help ourselves make changes.

These are push to avoid pain, blank pad and plain talk.

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La poliomielitis no tiene un contexto social actual

PROMOVIENDO SOLUCIONES POSITIVAS
Salud Post-Polio, Primavera 2016, Volumen 32, Número 2

PREGUNTA: Como joven sobreviviente de la poliomielitis, creo que lo más difícil es tener una enfermedad / diagnóstico que ya no tiene contexto social actual. Es como estar atrapado en un túnel del tiempo cultural. Tengo una condición que está relativamente curada y erradicada de la mayoría de las partes del mundo.

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