Polio Place

A service of Post-Polio Health International

post-polio clinics

Post-Polio Medical Care: Post-Polio Specialists and Primary Care Physicians

Joan L. Headley, Executive Director, Post-Polio Health International

Post-Polio Health International created a survey asking polio survivors about their post-polio medical care. The survey, Post-Polio Medical Care: Post-Polio Specialists and Primary Care Physicians, was posted online and a version was also published in Post-Polio Health (Volume 30, Number 2).

Data was gathered from 632 people; 496 completed the survey online and 136 copies received by mail were entered manually. Partial information was also entered.

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What's a Patient to Do?

Nancy Baldwin Carter, BA, M Ed Psych, Omaha, Nebraska, is a polio survivor, a writer, and is founder and former director of Nebraska Polio Survivors Association.

Let’s say we’re doctor-shopping. Maybe we’ve moved to a new city or our long-time doc is retiring—for whatever reason, we need a different doctor. Question is—where to start? How to choose?

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Options When a Post-Polio Clinic Is Not an Option

Carol Vandenakker, MD
Physical Medicine & Rehabilitation
University of California, Davis, Health System
Sacramento, California

Presented at PHI’s 9th International Conference: Strategies for Living Well (June 2005)

A. You must start with a good primary care physician.

1. Keys to finding a good doctor:

a. Look for a physician you trust and can communicate with.

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Post-Polio Clinics

WHO ESTABLISHES THE POST-POLIO CLINICS IN THE STATES AND HOW ARE THEY ORGANIZED?

Joan L. Headley, MS, Executive Director

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Evaluation Suggestions

To evaluate for post-polio syndrome, one must establish that an individual had paralytic polio and that current symptoms are due to the aftereffects of the remote polio and not due to other medical, orthopedic, or neurologic conditions. A comprehensive evaluation is done by a physician with input from members of a health care team who are experienced in the assessment and management of individuals who have neuromuscular diseases and/or functional limitations.

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