In 2016, Post-Polio Health International (PHI) surveyed health professionals with experience in post-polio patient care. A PowerPoint of some of the data can be viewed at Survey of Health Professionals with Experience in Post-Polio Patient Care. Post-Polio Health, Volume 33, Number 3, (August, 2017) will feature an article about the results, too.
One thought not discussed in either of the above is related to definition and ICD-10 codes. The survey asked health professionals the following.
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∞ LEADERSHIP
Nancy Baldwin Carter, Omaha, Nebraska
QUESTION: “My physician seems to have little knowledge of potential polio problems. Should I be worried? What are my options?”
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Joan L. Headley, Executive Director, Post-Polio Health International
Post-Polio Health International created a survey asking polio survivors about their post-polio medical care. The survey, Post-Polio Medical Care: Post-Polio Specialists and Primary Care Physicians, was posted online and a version was also published in Post-Polio Health (Volume 30, Number 2).
Data was gathered from 632 people; 496 completed the survey online and 136 copies received by mail were entered manually. Partial information was also entered.
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Nancy Baldwin Carter, BA, M Ed Psych, Omaha, Nebraska, is a polio survivor, a writer, and is founder and former director of Nebraska Polio Survivors Association.
Let’s say we’re doctor-shopping. Maybe we’ve moved to a new city or our long-time doc is retiring—for whatever reason, we need a different doctor. Question is—where to start? How to choose?
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Carol Vandenakker, MD
Physical Medicine & Rehabilitation
University of California, Davis, Health System
Sacramento, California
Presented at PHI’s 9th International Conference: Strategies for Living Well (June 2005)
A. You must start with a good primary care physician.
1. Keys to finding a good doctor:
a. Look for a physician you trust and can communicate with.
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WHO ESTABLISHES THE POST-POLIO CLINICS IN THE STATES AND HOW ARE THEY ORGANIZED?
Joan L. Headley, MS, Executive Director
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To evaluate for post-polio syndrome, one must establish that an individual had paralytic polio and that current symptoms are due to the aftereffects of the remote polio and not due to other medical, orthopedic, or neurologic conditions. A comprehensive evaluation is done by a physician with input from members of a health care team who are experienced in the assessment and management of individuals who have neuromuscular diseases and/or functional limitations.
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