relationships

When the “Cared For” Becomes the “Caregiver”

Audrey King
presented at FICCDAT Conference, Toronto, Canada, June 2011

I found my mother's diary recently – the one she kept during the 1950s when we were an Army family living in England. She’ll be 100 in 8 weeks. She lives with me, deaf, unable to walk & rapidly losing weight. She has dementia which roller coasters between inconsolable agitation and sleeping for days. During her lucid moments, she’s sweet – fascinatingly childlike – and still capable of the reciprocal love for everybody she has always had.

Who's in charge? Role of spouses

∞ LEADERSHIP
Nancy Baldwin Carter, Omaha, Nebraska

QUESTION: ”Who’s in charge? In our group, some of the spouses have taken over the leadership roles and they are not as understanding of our situation. Has this happened to other groups? How was it rectified?”

ANSWER: Who do you want to be in charge?

Clash of members' "abilities"

∞ LEADERSHIP
Nancy Baldwin Carter, Omaha, Nebraska

Bullying on Internet

Post-Polio Health, Volume 31, Number 4, Fall 2015

Dr. Stephanie T. Machell is a psychologist in independent practice in the Greater Boston area and consultant to the International Rehabilitation Center for Polio, Spaulding-Framingham Outpatient Center, Framingham, Massachusetts.

2016 WE'RE STILL HERE! Photo Contest

For WE'RE STILL HERE! Week, October 9-15, 2016, PHI asked of its Members - Send us a photo that illustrates polio survivors are active participants in family life. Have you taken your grandkids on a trip? Have you participated in their school activities? Do you contribute to your family life day to day in ways that may “surprise” others who do not have a disability?

Imperative to Fight Ableism

Karen Hagrup

I am disabled and proud. I have a doctorate and two daughters. I live in a nice condo with my partner. I’m retired and volunteer regularly in my community. People come to me for help. I rarely worry anymore about others’ attitudes toward my impairment; they’ve probably got it wrong anyway.

Too Pushy on Suggesting Changes?

Post-Polio Health, Volume 26, Number 3, Summer 2010.

Dr. Rhoda Olkin is a Distinguished Professor of Clinical Psychology at the California School of Professional Psychology in San Francisco, as well as Executive Director of the Institute on Disability and Health Psychology. She is a polio survivor and single mother of two grown children.

Worried about Father (and Mother)

Post-Polio Health, Volume 27, Number 1, Winter 2011.

Come Hear the Music Play

Nancy Baldwin Carter, BA, M Ed Psych, Omaha, Nebraska, is a polio survivor, a writer, and is founder and former director of Nebraska Polio Survivors Association.

The words kept running through my mind: “What good is sitting alone in your room?” Da dah da dah dah dah. Yes. That song from Cabaret. What was I thinking? Then it hit me. Exactly! How many polio survivors have said similar words as they explain their interest in a very special kind of volunteering—working with children.

Part I — Opening the Door; PART II—The Rest of the Story

Nancy Baldwin Carter, BA, M Ed Psych, Omaha, Nebraska, is a polio survivor, a writer, and is founder and former director of Nebraska Polio Survivors Association.

Part I — Opening the Door

The subject doesn’t come up much. Not many in the post-polio community seem to want to talk about it.

…Even though the American Medical Association declared it a disease well over forty years ago, in 1966.

Opportunities to Participate in Research

NEW STUDY ON AFM AND POLIO A new study concerning acute flaccid myelitis (AFM... More

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relationships