Post-Polio Health, Volume 30, Number 1, Winter 2014
Ask Dr. Maynard
Frederick M. Maynard, MD
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Live in the St. Louis area? Are you experiencing post-polio syndrome symptoms? If so, you may be interested in this study. Details.
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PHI awarded $25,000 to the Hadassah Medical Center in Jerusalem.
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Carolyn P. Da Silva, PT, DSc, NCS, Texas Woman’s University, Houston, Texas, and Yi-Wen Michelle Pu, MD, Baylor College of Medicine, Houston, Texas
In 2013, Post-Polio Health International awarded its seventh research grant ($25,000) to lead researcher, Carolyn P. Da Silva, PT, DSc, NCS, Texas Woman’s University.
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PHI awarded $25,000 each to two research groups in 2011. This is the report from the University of Michigan.
Claire Z. Kalpakjian, PhD, MS, University of Michigan, Department of Physical Medicine and Rehabilitation, Ann Arbor, Michigan
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Joan L. Headley, Executive Director, PHI
In late 2013, Post-Polio Health International awarded $100,000 to the team of Antonio Toniolo, MD; Andreina Baj, MD; Martina Colombo, PhD – Laboratory of Medical Microbiology and Virology, Department of Biotechnology and Life Sciences, University of Insubria Medical Center, Varese, Italy, to expand its search for poliovirus genome in various populations.
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Joan L. Headley, Executive Director, Post-Polio Health International
Typical of most studies, the name of the most recently announced study related to post-polio syndrome is long but exactingly descriptive: A Multicenter, Prospective, Randomized, Placebo-controlled, Double-blind, Parallel-Group Clinical Trial to Assess the Efficacy and Safety of Immune Globulin Intravenous (Human) Flebogamma® 5% DIF in Patients with Post-Polio Syndrome.
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Opportunity to Participate in Research
For more than 10 years, researchers have explored using IVIg to help improve quality of life of polio survivors. The article linked below lists the medical articles published on this topic. To find the abstracts, go to PHI’s Polio Place.
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Frederick M. Maynard, MD, Michigan
Frederick M. Maynard, MD (now in Marquette, Michigan) and a team of investigators from the University of Michigan Medical Center, Ann Arbor, Michigan, have completed their final report for the study "The Late Effects of Polio: A Model for the Identification and Assessment of Preventable Secondary Disabilities." A summary follows.
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Roberta Simon, RN, Illinois
Research is an important aspect for the medical community in dealing with any health difficulty that has no previous history of known causes or treatments. Unfortunately, as we are all aware, post-polio syndrome falls into this category. Since many of us have been or will in the future be asked to participate in research, I think it is wise for us to consider a few questions and options.
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