Polio Place

A service of Post-Polio Health International

independent living

Who's in charge? Role of spouses

∞ LEADERSHIP
Nancy Baldwin Carter, Omaha, Nebraska

QUESTION: ”Who’s in charge? In our group, some of the spouses have taken over the leadership roles and they are not as understanding of our situation. Has this happened to other groups? How was it rectified?”

ANSWER: Who do you want to be in charge?

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Clash of members' "abilities"

∞ LEADERSHIP
Nancy Baldwin Carter, Omaha, Nebraska

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Newsletter content

LEADERSHIP
Nancy Baldwin Carter, Omaha, Nebraska

QUESTION: “We have published a support group newsletter for more than ten years and feel it is time to re-evaluate its content. What should go into a good polio newsletter?”

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Losing our rights?

∞ LEADERSHIP
Nancy Baldwin Carter, Omaha, Nebraska

QUESTION: “Members in our group have been commenting on certain changes that affect our lives in many ways. Seems as if various government agencies aren't as willing to help as before, for instance, and sometimes we're left with a financial burden we can't handle. Are we in danger of losing some of the rights so many of us fought for?”

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Imperative to Fight Ableism

Karen Hagrup

I am disabled and proud. I have a doctorate and two daughters. I live in a nice condo with my partner. I’m retired and volunteer regularly in my community. People come to me for help. I rarely worry anymore about others’ attitudes toward my impairment; they’ve probably got it wrong anyway.

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That Old Feeling

Nancy Baldwin Carter, BA, M Ed Psych, Omaha, Nebraska, is a polio survivor, a writer, and is founder and former director of Nebraska Polio Survivors Association.

It got their attention—our friend Mac wheeling along in his power chair, lugging three two-by-fours and a standard toilet stool into the City Council meeting.

He’d been there before, our friend Mac, and had made no headway trying to describe why the city government building restrooms made it impossible for people like him in wheelchairs to use those facilities.

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Home Sweet Home?

Nancy Baldwin Carter, BA, M Ed Psych, Omaha, Nebraska, is a polio survivor, a writer, and is founder and former director of Nebraska Polio Survivors Association.

FACT: 90% of Americans polled said they definitely do not want to live in a nursing facility.

FACT: 80% of Americans polled want to continue living in their own homes until the end.

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Come Hear the Music Play

Nancy Baldwin Carter, BA, M Ed Psych, Omaha, Nebraska, is a polio survivor, a writer, and is founder and former director of Nebraska Polio Survivors Association.

The words kept running through my mind: “What good is sitting alone in your room?” Da dah da dah dah dah. Yes. That song from Cabaret. What was I thinking? Then it hit me. Exactly! How many polio survivors have said similar words as they explain their interest in a very special kind of volunteering—working with children.

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Racking Up Success

Nancy Baldwin Carter, BA, M Ed Psych, Omaha, Nebraska, is a polio survivor, a writer, and is founder and former director of Nebraska Polio Survivors Association.

A few years ago Hubby’s dentist gave him a scruffily pathetic Christmas cactus that wasn’t doing well under her tutelage. He brought it home, put in on his desk under the desk lamp, in front of an east window, next to the room’s heating duct, and here it is kept throughout the year.

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Movin' On

Nancy Baldwin Carter, BA, M Ed Psych, Omaha, Nebraska, is a polio survivor, a writer, and is founder and former director of Nebraska Polio Survivors Association.

We’re talking civil rights here. Big Time. “Our crowning achievement of the 20th Century,” as Justin Dart, Jr. called it—the passage of the Americans with Disabilities Act—the ADA. On July 26 we celebrated its anniversary. Twenty years of freedom.

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