Polio Place

A service of Post-Polio Health International

family

When the “Cared For” Becomes the “Caregiver”

Audrey King
presented at FICCDAT Conference, Toronto, Canada, June 2011

I found my mother's diary recently – the one she kept during the 1950s when we were an Army family living in England. She’ll be 100 in 8 weeks. She lives with me, deaf, unable to walk & rapidly losing weight. She has dementia which roller coasters between inconsolable agitation and sleeping for days. During her lucid moments, she’s sweet – fascinatingly childlike – and still capable of the reciprocal love for everybody she has always had.

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Who's in charge? Role of spouses

∞ LEADERSHIP
Nancy Baldwin Carter, Omaha, Nebraska

QUESTION: ”Who’s in charge? In our group, some of the spouses have taken over the leadership roles and they are not as understanding of our situation. Has this happened to other groups? How was it rectified?”

ANSWER: Who do you want to be in charge?

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What Does Future Holds for Young Polio Survivor

Post-Polio Health, Volume 31, Number 2, Spring 2015.

The following question has come to Post-Polio Health International a number of times via phone, email and letter. We asked our regular Post-Polio Health columnists Frederick M. Maynard, MD; Rhoda Olkin, PhD; and Stephanie Machell, PsyD, to comment on it for our readers.

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2016 WE'RE STILL HERE! Photo Contest

For WE'RE STILL HERE! Week, October 9-15, 2016, PHI asked of its Members - Send us a photo that illustrates polio survivors are active participants in family life. Have you taken your grandkids on a trip? Have you participated in their school activities? Do you contribute to your family life day to day in ways that may “surprise” others who do not have a disability?

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Imperative to Fight Ableism

Karen Hagrup

I am disabled and proud. I have a doctorate and two daughters. I live in a nice condo with my partner. I’m retired and volunteer regularly in my community. People come to me for help. I rarely worry anymore about others’ attitudes toward my impairment; they’ve probably got it wrong anyway.

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Explaining PPS to New Friends

Post-Polio Health, Volume 30, Number 3, Summer 2014.

Dr. Rhoda Olkin is a Distinguished Professor of Clinical Psychology at the California School of Professional Psychology in San Francisco, as well as Executive Director of the Institute on Disability and Health Psychology.
She is a polio survivor and single mother of two grown children.

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Partner Abuse and People with Disabilities

Post-Polio Health, Volume 30, Number 4, Fall 2014.

Dr. Rhoda Olkin is a Distinguished Professor of Clinical Psychology at the California School of Professional Psychology in San Francisco, as well as Executive Director of the Institute on Disability and Health Psychology.

She is a polio survivor and single mother of two grown children.

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Husband "Needs" the Information

Post-Polio Health, Volume 30, Number 2, Spring 2014.

Dr. Rhoda Olkin is a Distinguished Professor of Clinical Psychology at the California School of Professional Psychology in San Francisco, as well as Executive Director of the Institute on Disability and Health Psychology.

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On Being Mocked

Post-Polio Health, Volume 30, Number 1, Winter 2014

Dr. Stephanie T. Machell is a psychologist in independent practice in the Greater Boston area and consultant to the International Rehabilitation Center for Polio, Spaulding-Framingham Outpatient Center, Framingham, Massachusetts. Her father was a polio survivor.

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Trouble Forgiving

Post-Polio Health, Volume 29, Number 1, Winter 2013.

Dr. Rhoda Olkin is a Distinguished Professor of Clinical Psychology at the California School of Professional Psychology in San Francisco, as well as Executive Director of the Institute on Disability and Health Psychology. She is a polio survivor and single mother of two grown children.

Question: I am a 72-year-old widowed male. I read in the September issue about the reader whose parents didn’t tell her about having polio and only discovering it as an adult.

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