LEADERSHIP
Nancy Baldwin Carter, Omaha, Nebraska
QUESTION: “We have published a support group newsletter for more than ten years and feel it is time to re-evaluate its content. What should go into a good polio newsletter?”
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∞ LEADERSHIP
Nancy Baldwin Carter, Omaha, Nebraska
QUESTION: “Members in our group have been commenting on certain changes that affect our lives in many ways. Seems as if various government agencies aren't as willing to help as before, for instance, and sometimes we're left with a financial burden we can't handle. Are we in danger of losing some of the rights so many of us fought for?”
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Karen Hagrup
I am disabled and proud. I have a doctorate and two daughters. I live in a nice condo with my partner. I’m retired and volunteer regularly in my community. People come to me for help. I rarely worry anymore about others’ attitudes toward my impairment; they’ve probably got it wrong anyway.
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Part III of a three part series published in Post-Polio Health, (Volume 29, Number 4) in 2013.
Nancy Baldwin Carter, BA, MEd Psych, Omaha, Nebraska
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Part II of a three part series published in Post-Polio Health, (Volume 29, Number 3) in 2013.
Nancy Baldwin Carter, BA, MEd Psych, Omaha, Nebraska
Surely we don’t need studies to prove that planning ahead is a good idea, yet plenty of them exist, even when it comes to end-of-life issues. The goal, of course, is to assure that a patient’s medical care will ensure the greatest measure of comfort and serenity possible.
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Part I of a three part series published in Post-Polio Health, (Volume 29, Number 2) in 2013.
Nancy Baldwin Carter, BA, MEd Psych, Omaha, Nebraska
My mother has been on my mind. She’s been gone now for ten years. Death finally came to her after several merciless years of progressive suffering and pain in the nursing home she had selected to take care of her. We had all discussed end-of-life issues with Mother; we knew this was exactly the quality of life she hoped to avoid.
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Nancy Baldwin Carter, BA, M Ed Psych, Omaha, Nebraska, is a polio survivor, a writer, and is founder and former director of Nebraska Polio Survivors Association.
We’re talking civil rights here. Big Time. “Our crowning achievement of the 20th Century,” as Justin Dart, Jr. called it—the passage of the Americans with Disabilities Act—the ADA. On July 26 we celebrated its anniversary. Twenty years of freedom.
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Grace Young
When I had polio at age 9, I was happy to have a wheelchair - any wheelchair - that would allow me the freedom to leave my bedroom. The only model available at that time was all wood with a cane back and wooden wheels. Undoubtedly it’s featured in the Smithsonian now. Large, heavy, clunky - forget taking it outside the house. It was a feat to even move it inside the house.
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Fr. Robert J. Ronald, SJ, Taiwan
Please don't notice only our disabilities. They are the first thing that you see, but they are not the most important thing there is to know about us.
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Sunny Roller
As we celebrate the stunning success of the polio vaccine today, I am honored to help commemorate the anniversary by sharing a very personal perspective with you.
Fifty-three years ago, when I was four years old, I almost died from polio. During the acute phase, I could only move one finger. The rest of me was completely paralyzed.
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